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Journal of Neurology and Neuroscience

  • ISSN: 2171-6625
  • Journal h-index: 15
  • Journal CiteScore: 2.13
  • Journal Impact Factor: 1.45
  • Average acceptance to publication time (5-7 days)
  • Average article processing time (30-45 days) Less than 5 volumes 30 days
    8 - 9 volumes 40 days
    10 and more volumes 45 days
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Abstract

Economic and Employment Issues in Patients with Dystonia: A Self-report Questionnaire Survey

Masahiro Horiuchi, Shuichi Kawashima, Kazutaka Mochizuki and Taku Satoh

Background: Dystonia is a condition that can affect quality of life and lead to employment and financial difficulties. We evaluated the adverse effects of dystonia on daily life and the cost involved in treatment.

Methods and findings: We conducted a postal mail questionnaire survey of 226 patients with various types of dystonia who were members of the Dystonia Friends Association, a Japanese nonprofit organization. Many individuals suffered economic and employment problems (30%) and pain (21%) because of dystonia. They urged that social security and the medical system be improved (16%).

Conclusions: Patients reported regularly experiencing inconvenience in daily life for economic, employment, and pain reasons. Improving the quality of life of patients with dystonia by reducing these burdens is a key aspect in its clinical management.